Saturday, 13 February 2010

The Clown's Meme 1

I found this on the Sunday Stealing blog. I know I need to do a proper update and will soon, but just fancied doing this :)

1. How old will you be in five years? 24 - that sounds scary! :P

2. Who did you spend at least two hours with today? My mum :)

3. How tall are you? 5ft 4"

4. What do you look forward to most in the next six weeks? Seeing Mika in concert for the 3rd time at the end of the month :D

5. What’s the last movie you saw? Up In The Air

6. Who was the last person you called? I hate using the phone, lol. Can't remember, but I think it was the pharmacy at the surgery

7. Who was the last person to call you? The optician I think to reschedule my eye test

8. What was the last text message you received? From my cousin last night to say thanks for her birthday parcel

9. Who was the last person to leave you a voicemail? No-one ever leaves me voicemails on my mobile, people tend to call the housephone instead

10. Do you prefer to call or text? Text, I hate speaking on the phone

11. What were you doing at 12am last night? Surfing the Internet I think, Claire had just gone home

12. Are your parents married/separated/divorced? Married

13. When is the last time you saw your mom? About 5 mins ago, lol

14. What color are your eyes? Brown

15. What time did you wake up today? 10am

16. What are you wearing right now? My cosy boot slippers which are falling apart, my pyjamas and my big dressing gown

17. What is your favorite christmas song? Fairytale of New York - The Pogues and Kirsty MacColl

18. Where is your favorite place to be? Home :)

19. Where is your least favorite place to be? Hospital

20. Where would you go if you could go anywhere? New York, Australia or New Zealand, can't decide which one

21. Where do you think you’ll be in 10 years? I have no idea, but I'd like to be healthy, happy, in a job I enjoy and in a relationship. I'd also like to have children and a dog :)

22. Do you tan or burn? Tan

23. What did you fear was going to get you at night as a child? I have no idea

24. What was the last thing that really made you laugh? Playing on New Super Mario Bros Wii with Claire last night :D

25. How many TVs do you have in your house? 3 - one in the living room, one in the spare room (though I don't think that one is even plugged in!) and one in my bedroom

26. How big is your bed? It's a normal sized single bed

27. Do you have a laptop or desktop computer? I have a laptop, but the family computer is a desktop

29. What color are your sheets? Blue

30. How many pillows do you sleep with? One

31. What is your favorite season? Spring or autumn, not too hot but not too cold either

32. What do you like about Autumn? My birthday :D

33. What do you like about winter? Being cosy inside when it's cold outside

Quick note

I just wanted to reassure everyone that I am fine, but sorry for neglecting my blog this week. I'll try to get it back up to date as soon as I can.

Thursday, 4 February 2010

A busy day yesterday and exhaustion again

I know it's not long since my last update, but I thought I'd update again now to hopefully try and stop my updates being as ridiculously long! I suspect it wont last though :P

On Tue I rang Lizzy to let her know about a TV programme on that night that I thought she might be interested in. It was lovely chatting to her :) While I was on the phone to Lizzy, my aunt's partner called round with a dead hare for us. There are quite a few people who bring us game round every so often which dad prepares it in the garage and then mum cooks it for a meal. We often have rabbits, pigeons and pheasants. We've also eaten muntjac deer and squirrel! And last night and tonight we ate our first hare.

On Tue evening I suddenly started to feel completely exhausted so lay on the sofa for a while to rest. I didn't mean to fall asleep, but I did doze for a bit. Then dad decided that he was bored, so put the TV on. Grrr. I felt a bit better later on that evening though so helped mum put some photos up on Ravelry. We found some photos of a very cute knitted monkey, so then mum looked up the pattern for it on Ravelry and is currently knitting me one :) All of the pieces are knitted and stuffed now and mum is going to finish sewing it together tomorrow. I'll post up a photo on my next update :)

And as I said on my last blog update, my dietician emailed me on Tue night and let me stop my feeds :D She's going to phone tomorrow to talk to me about my food and symptom diary. Hopefully she'll have some helpful suggestions as my tummy pains have been very bad over the last few days.

And on Tue I heard the new Haiti charity single for the first time. You can see the video here. I personally think it sounds horrible, but I'm sure it'll sell well because it's for charity and has so many famous names in it. I was disappointed at how little of Mika you hear, but apparently he plays the piano in it too. I couldn't work out who the voices belonged too, but then I found this list that names the artists and the order they sing in, so I found that helped.

That evening I watched a very interesting programme on the BBC about selective mutism called My Child Wont Speak. And that day I watched Bride Wars on DVD :) We also watched the first ever episode of the Royle Family on DVD.

I had a very busy day yesterday. I usually get up around 10 or 11am, but heard that Marina and the Diamonds concert tickets for her May tour would go on sale at 9am yesterday morn, so I got up at 8.45am! Frustratingly though all the venues are standing only and I can't stand for that long. So I wont be going :( Hopefully if she gets famous though she'll do a bigger tour including venues with seating, fingers crossed.

Marina and the Diamonds was on GMTV this morn which you can watch here. The song she performs on the clip is actually called Hollywood, unlike what the caption on the video clip says. Hollywood is currently number 13 in the iTunes downloads and has been for a few days. Hopefully it'll chart inside the top 10 on Sun. I found 2 free Marina and the Diamonds downloads from her website today (click 'downloads' at the top of the page) - I didn't like the Hollywood remix, but love the live version of I Am Not A Robot. And I discovered that her debut album, The Family Jewels, was available to preorder on Amazon for just £4.98 here, so I preordered that.

And yesterday morn I spoke to K's mum on MSN. It was ages since I'd last spoken to her so it was great to hear that K is out of hospital and doing well at the moment :)

Me and mum called in at the surgery to pick up some more high calorie puddings for me and we also let the pharmacist know that I'm now having 7 a week rather than just 4 a week. So they'll be ordered in fortnightly for me.

Then we went into town. I had a bit of time to spare before my 2nd Pathways to Work appt so did a bit of shopping. I picked up a really interesting book all about the making of the film Chicken Run in a charity shop for just £1.50 (it would cost £20 new!). And then we went to Boots to look at what they had to help my feet. I chose a pair of things to put in my shoes which should cushion my heels and support the arches of my feet. I couldn't believe that they cost £10 though. Luckily mum had some money on a Boots gift card so that covered it as well as some toothbrush head covers that I bought.

My Pathways to Work appt went ok. I told my advisor that I didn't think I'd be able to do any voluntary work because my health isn't predictable enough to do anything regularly. She thought that working in a charity shop would be the best kind of voluntary work for me to try, so suggested that between us we phone some local charity shops and ask how they'd be if I was to volunteer but couldn't always make it in. So my advisor is going to phone the 6 charity shops in that town and I'm going to phone the 7 charity shops in another local town. I'm still not confident using the phone, but I'll give it a try. I'm not sure about working in a charity shop. I don't mind charity shops, in fact I shop in them a lot, but just don't really like the idea of working in a shop. I guess I could try it though and I could always quit if I didn't enjoy it. We're meeting again next month and we'll see where we've both got with the phone calls then.

After my Pathways to Work appt I met mum in Sainsburys where we had drinks in the cafe. And I picked up a copy of The Proposal on DVD for £5, which is cheaper than it is anywhere on the Internet :)

And then yesterday evening Claire came round after work and we went into the city to the cinema. The cinema we went to was lovely, such a contrast to the big multiplex Cineworld I usually go to. There was a great atmosphere and it felt more like going to the theatre than the cinema. The actual screen was a bit smaller so I worried that I wouldn't be as absorbed, but I was. And everyone took glasses of wine into the cinema! It was a little bit more expensive than Cineworld, but they accepted my CEA card.

The film we saw, Precious, was amazing. It's such a powerful film, really well made and the acting was incredible and so believable. I thought some of the film making techniques they used, such as the completely black screen at points and also the lack of background music, were very effective. The film was really shocking and so sad, I thought I was going to have to leave the cinema at one point because it was so hard to watch. But I'm definitely glad I saw it though and would highly recommend it. I'm glad I went with Claire rather than mum though as I know mum wouldn't have been able to cope with it.

The Oscar nominations were announced earlier this week and you can see them here. Precious is nominated for 6 awards and I really hope it wins some of them as I think it definitely deserves to.

When we left the cinema and headed back to the car, the parking machine gave Claire an extra pound in change :) On the way back me and Claire were chatting in the car and on about 3 occasions I meant to say one word, but actually ended up saying a different, but similar sounding word. For example Claire asked what I'd thought of the cinema and I wanted to say it was very different to Cineworld, but I actually ended up saying “It was very difficult” which wasn't what I meant. Grr. It was odd as that's never happened to me before, but I know that it can be an ME thing. Claire then came back for a bit and we played on the Wii together :)

Before I got up this morning, mum got a phone call from Hosp B saying that they hadn't received my blood results from Hosp H! This happened last time I had bloods done, but they were found eventually that time, so hopefully they will be this time. I think it's probably due to the new phlebotomist at Hosp H.

This morning I bought a present for my friend Rosie online, even though her birthday isn't til May! And it was dispatched to me this afternoon. I feel very organised :) I can't say any more here as I know Rosie will be reading.

This week my mum wanted to knit something from the yarn that my uncle Dan gave her on Sun and the blue eyelash yarn reminded her of a thistle, so that's what she knitted!

While mum and Alf were out at the optician today, I printed out a photo of the thistle she'd knitted for her (as mum isn't very good with technology) and then she made it into a card to send to Dan and Diane. Mum was very pleased that I printed the photo out for her, so in exchange she said she'd make a phone call for me. When I used to do things for her, in return she'd say she'd wash my NG tube because I used to hate doing that, but obviously that swap wont work any more. At the optician she'd enquired when my next eye test should be as I thought I was due one, but didn't get a reminder letter like mum and Alf did. It turns out I am due an eye test (in fact it's a few months overdue), so I don't know what happened to my reminder letter. So mum phoned up to arrange me an eye test for next Thur and also helped sort out me getting the eye test for free because I'm on ESA. I knew it should be free, but the receptionist couldn't find ESA on her list. It was sorted in the end though.

This afternoon my older brother Chris phoned which was quite a surprise because he's not been in touch for a while. They've almost finished the move now, but still need to do some degu proofing :P And they haven't found out how to use the heating yet either! Chris was ill earlier in the week, but is better now. Me and mum have been invited over to their new cottage next Wed :) And Chris is going to help me put my spare Mika tickets up on eBay. They were dispatched today so should get to me in plenty of time for me to send them on to whoever buys them before the concert.

I tried to watch my new DVD, The Proposal, this afternoon. I loved it when I saw it in the cinema. But my tummy really hurt and I just couldn't concentrate on it, so had to give up with it for the time being. I was completely exhausted and after tea I got quite fed up. But I listened to some music (Marina and the Diamonds, Ellie Goulding, Mika and Pixie Lott) on my laptop and that cheered me up :)

Because I can only drink cooled boiled water, I always keep a jug of it in the fridge. When I notice that my jug of water is getting empty, then I boil the kettle, pour it into another jug and put it outside to cool overnight. So tonight I was preparing a new jug and had just boiled the kettle. I started to pour the kettle of boiling water into the jug and everything started off fine. Then I realised that I was no longer pouring into the jug, but instead was pouring the boiling water all over the kitchen work top and the floor. Luckily I got my feet out of the way just in time. Whoops. Mum suggested that from now on I should put the jug in the sink to fill it up, so if I miss with the boiling water it will only go in the sink.

On TV I've just watched a Channel 4 documentary called 8 Boys and Wanting a Girl.

Alf is very annoyed at the moment because the local bus timetable is about to have drastic cutbacks. We've got a copy of the new timetable, but it wont come into effect til 14th Feb. This bus route runs from one of our local towns, through our village and to the other local town with a couple of other villages along the route. Alf uses the buses regularly to meet up with his friends in the town where we both used to go to school. The buses were half hourly, but will now go to hourly. Currently the last bus is at about 11pm, so Alf can go into town to meet up with his friends in the evenings and come home on the last bus. But that's not going to be possible any longer as the last bus will be just after 7pm! He's got a bike (that he got for Christmas), but the weather isn't really cycling weather yet, so I don't know what he's going to do. I reckon he ought to get a job and save up some money so he can start learning to drive when he turns 17 next month, but he's never going to get a job, he's too lazy!

A couple of times this week I've had a funny feeling in my arms or hands that I've not had before. It feels like the feeling you get after you've had cramp, but I haven't had cramp. How odd. I'll just blame it on ME and see how it goes.

That update was longer than I expected, but at least it's not as long as it would have been if I'd left it longer to update! :P

Tuesday, 2 February 2010

Reply from dietician

I know I wrote a full blog update earlier today, which you can find here, but I just wanted to do a little update after hearing from my dietician this evening.

Firstly she said she is happy for me to stop feeds, yay! :D So hopefully I'll be able to sustain my weight just through normal eating plus one high calorie pudding each day. We'll review my weight again next Tue.

And she was very apologetic about not managing to get back to me about my food and symptom diary earlier. She said she'd phone tomorrow to discuss it, but if she doesn't manage to catch me tomorrow (as I'll be out at my 2nd Pathways to Work interview in the afternoon and hopefully out at the cinema in the evening), she'll phone on Friday instead. Hopefully she'll have some suggestions for my tummy pains.

Not feeling well, bloods, cinema and shopping

Sorry for leaving it so long between updates, this might be a bit long! :P Despite making an effort to do less than usual this week, I felt really exhausted from last Mon evening til the weekend. I think that's partly because my nocturnalism has been quite extreme this week though. And I gave myself a Wiinjury from a Wii Sports Resort session late at night on Wed when I was feeling very nocturnal. I think that going from doing very little activity to doing an hour of swordplay and bowling wasn't sensible! My arm was so sore for the next 2 days. My tummy has also been worse than usual this week and I've had odd headaches too including a bad one on Sun. Because I've felt quite rough this week I had to cancel some plans which was frustrating. On Thur aft I was planning to go shopping in town, but didn't manage that as I was too tired. And an old friend (Sarah B) was supposed to pop round last Tue evening, but I wasn't feeling up to it. We rescheduled to Thur but I had to cancel that too. That evening I was just really fed up with everything and having to cancel yet more plans, but that didn't last for long and I was almost back to my normal cheerful and optimistic self the next day. Surprisingly after my most nocturnal night yet on Fri (got to sleep about 4am), I felt really good on Sat. I did crash with exhaustion that evening though. Sun and yesterday I didn't feel too tired at all :)

I often feel very cold, even when the heating is on and I'm sitting next to the radiator! Mum and dad always turn the heating off when they go to bed, which is sometimes 3 hours before I go to bed, so then the house gets quite chilly. They've said that they can't heat the house just for me, but I'm going to ask if I can have a heater in my bedroom.

My weight was up again to 51.4kg last Tue so I emailed my dietician to ask her what the plan was now as the previous week she'd said we'd review it then. I also asked if she'd managed to look at my food and symptom diary yet as I really want some help with my tummy pains. I also need to chase my Hosp B consultant up to ask more about the scope results because I know they found some inflammation that might explain the pains I'm getting. My dietician hasn't replied yet, but I found out from someone else that she was away at a conference last week, so hopefully she'll get in touch with me soon now she's back in the office. My weight this morn was 51.6kg :)

I'm struggling with lying down at the moment because it's really uncomfortable in my abdomen when I do. When I saw my consultant from Hosp A in July he told me that he thinks its something called an incisional hernia which has developed from one of my old operation scars, but I'm going to ask for a second opinion when I'm next at Hosp B. If it is an incisional hernia then I might need an operation to fix it, but I really don't want yet another operation. It's fine when I'm sitting or standing, but I often struggle to get comfortable when I lie down to sleep.

When I go out for a walk round to the local shop or surgery I think I must have started walking slightly faster (but not particularly fast) because I'm cold and want to get out of the cold. And annoyingly when I get to my destination I am often out of breath.

Last Sun I found out that Holly C has got a photography exhibition up in London at the moment. Last year she photographed kidney transplant recipients and their living donors, so it's those photos that are on display. If you're going to be in London in the next fortnight please pop in and have a look, you can find out more here. I'm hoping I'll be able to get there.

Last Mon morn me and mum attemped to take some blood via a fingerprick to post off to Hosp B so they could test my Tac level. But I just wouldn't bleed and we gave up after 3 fingerpricks because we hadn't even got a quarter of the amount of blood we needed! I phoned up Liver Direct then to request some more Tac kits for my next attempt as I thought we'd run out. Luckily though I found some we'd got, which is good as Hosp B haven't sent me the ones they said they would yet! Mum was out at work last Tue morn, but we attempted to take my Tac blood again on Wed morn and luckily that was successful and I posted it off that aft.

Last Mon I went to Hosp H to have the rest of my bloods taken. The phlebotomist there was the one who has passed me over to the more experienced phlebotomist before when she's seen me before, but she was there alone last Mon, so had to take my blood. I stopped bleeding part way through, but hopefully she got enough blood. I'll chase my Tac blood and my other blood results up this week.

That aft I went into town to meet with someone from Pathways to Work to help me produce a CV. I'd already drafted my CV so thought the appt wouldn't take long. But although the man I saw was very helpful and had loads of new ideas for my CV, he was also quite nattery, so the appt took 2.5 hours! Phew! I'm happy with my finished CV though, but I was very tired after that! When I came out of that appt and met up with mum she told me that Alf had got a lift home from college early rather than waiting for the bus, so was at home, but locked out! So we rushed home to let him.

And last Mon I also went round to the local post office to post off a letter to Mawite (Lizzy's husband's niece) who lives in Burma/Myanmar and started to write up my transplant story to be published on the Transplant Kids website. It's ended up quite long though, so I need to cut it down before it's ready to be published.

Last Tue I heard that someone I know (but not closely) from AYME has been quite ill in hospital recently. So I wrote her a card and posted it off. Hopefully it'll have cheered her up. I didn't do much else that day because I was very tired after the day before.

Last Wed I did some odd bits and pieces such as helping mum clear some shelves in the dining room. I also remembered that I have 3 spare standing tickets for the Mika concert at the end of the month that I need to sell, so I advertised them on Facebook and Twitter. No-one has shown any interest in them though, so I think I'm going to put them up on eBay sometime this week. If you are interested or know someone who might be interested then please let me know.

That evening me and mum went to the cinema with Claire. We got stuck in the rush hour traffic on the way there though so were late, but luckily we didn't miss any of the film, just some of the trailers. We tried to get all 3 of us in for the price of one (because of Claire's Orange Wed offer and my CEA cinema card) and managed it, but I don't think we'd get away with it again, lol. The film we saw was It's Complicated, Meryl Streep's latest film. Some of it was very funny, but some parts were a bit slow for me. I did enjoy it though. Afterwards Claire came back to our house for a little while, so I came home in her car rather than with mum. Claire decided to take a different route to beat mum home, but despite mum getting lost, we still failed spectacularly! Claire blamed the level crossing but even if that had been open, I'm sure mum would still have got home first, lol.

And it was that night I played on Wii Sports Resort after midnight! Hehe :P

On Thur morn I received a letter from my dieitician about the British Transplant Games 2010. I'm not going to go though. And I also received some Scoubidou strings from someone on AYME so I might have a play with them sometime if I can find some easy to follow instructions on the Internet. On the AYME forums there is a thread where people share photos of their bedrooms and I'd been meaning to contribute for ages so finally got round to taking some photos of my bedroom on Thur and sharing them on the forum. I hope to make a blog post with them soon :)

Mum went into town on Thur to meet up with someone for lunch, so I decided to make myself some sandwiches. That would have gone fine if the bread wasn't in the freezer. I'd seen mum microwave it before to defrost it so I attemped that but the first slice I tried ended up hot in the middle but still frozen round the edge, whoops! :P That evening I found out that there were some free downloadable Wiiware demos, so I downloaded a couple of those and really enjoyed playing Nyx Quest, so might pay to download the full version at some point.

On Fri morn in the post I received a card from Royal Mail saying that they couldn't deliver a letter for me because it was short of 8p postage! How ridiculous. I thought it was from my AYME buddy Kate because she told me that she'd posted me something in the middle of last week. So yesterday my mum went round to the post office for me and paid the missing 8p plus a £1 handling charge.

Fri eve Claire came round for tea and to attend mum's fortnightly knitting group - Knit Lit. A journalist visited them on Fri and they're going to be in a local magazine! While Claire was here we had great fun playing on New Super Mario Bros Wii together and we've now managed to get onto the 3rd world (there are 8 in total). And that night when I was feeling nocturnal I played on New Super Mario Bros Wii for a bit by myself (and got frustrated at the difficulty of it) and then played on an old Kirby game I'd downloaded for my Wii.

On Sat I tried to persude mum to take me out somewhere because I was feeling better, but she didn't feel like it. She said she'd take me out on Sun though. On Sat morn I received my CRB check in the post, that was processed quickly. Hopefully I'll soon be able to be the AYME regional contact for my area now the CRB check has been completed. The family DVD player died earlier in the week and dad couldn't fix it. It was old though, it'd been Chris' originally, then mine and then the family's. So dad picked us up another one which has been working well. When my dad came back from visiting my nan on Sat he had some late Christmas money for all of us from her. I got £40 :) On Sun night I wrote her a thank you note and that was posted yesterday morn.

On Sun I had quite a busy day. It didn't get off to a good start though when mum told me that she'd accidently put my Little Boots t-shirt in the tumble drier and it appeared to have shrunk! I need to try it on though to see if it's still wearable or not. It looks small, but mum tumbled one of my vests earlier in the week and that still fits.

Late morn me and mum went to see nan. We timed it badly though as we got there just as my uncle Dan (dad's brother, my nan's son) and his wife Diane arrived. Diane is lovely, but Dan is very odd, like all dad's siblings! :P He was such a know it all and kept talking over the rest of us. I hardly got a word in. They also kept turning the conversation to food, which isn't my preferred topic of conversation! And when you've got 4 people in a room who are all over 50 they can get quite nostalgic, which was quite boring for me as lots of the things they talked about were before I was born! Dan did ask me about my trip to Japan, but then before I'd said much he was telling us what he knew about Japan, despite him not having been there. And then when the topic of my ME came up Dan was so clueless. I couldn't tell him what ME stands for (I would recognise it, but can't say it) so told him that it's also known as Chronic Fatigue Syndrome. So he told me that he must have that because he's always tired! Then later on he told me that my ME will go away if I get motivated to do something!! Me and mum soon made our excuses and left but I left nan a copy of my CV to look at later and hopefully we'll be able to visit her on our own later in the week.

Someone from one of the flats when nan lives had died recently, so some of her books, DVDs and CDs were for sale for donations. I got 3 DVDs (The Graduate, Titanic and Runaway Bride) and Pretty Woman CD soundtrack. My nan has enquired about moving flats because the one that is now empty (that the woman who died lived in) is bigger than my nan's and has more windows.

Me and mum didn't feel like going straight home after that so went to a shopping centre in a nearby city instead. We missed the turn off on the way there so got a bit lost, but we got there eventually after an adventure! :P We had fun dodging round the huge Tesco there to avoid some people we had seen (my best friend from primary school and her mum) but didn't want to see us, lol. I tried on some jeans, but decided against buying them, and looked at some coats because my current one is at least 6 years old so I fancy a change. I didn't find one I liked though, so will keep looking. I bought a Wii game called Klonoa in GAME. I'd had my eye on it for a while, but because this copy was preowned it should have cost £15, but GAME had marked it down to £10 in their sale and then I had £.2.50 credit on my GAME reward card, so I got it for just £7.50. I've only played on it for a little while so far, but I like it :) I also got a DVD of a film that I like called Definitely Maybe for £3 in Tesco. Me and mum had some drinks in the cafe before heading home.

That evening I discovered that there is an ME support group in the city which meets every 2 months, so I'd like to give that a try. Their meetings are in the evenings though and my mum isn't keen on driving at night, so she might need some persuading. It would be too much for me to attempt to get there on the buses. The next meeting is in March, but it's a day that my mum is out in the aft and my dad is off work on annual leave, so I might be better to try for the meeting after that. I'll let you know.

On Sun night I was on Facebook when I spotted that Sophie (Chris' girlfriend) had posted that she was excited in her status. A friend had asked her why and she'd replied because they were moving tomorrow! I knew that they would be able to rent the cottage they wanted (it's still only local), but last we knew they were going to move in in March. I asked Sophie why Chris hadn't let us know and she said that he'd been too busy with work. Surely it wouldn't have been too hard to ring or even text mum to let her know though. Boys! Hopefully they'll be in their new cottage now.

When I had my transplant I developed some blisters/pressure sores on my heels from being in one position for a long time. They were very painful at the time, but healed ok. About 6 months ago my heels became quite sore after I did more walking than usual and recently they've been sore sometimes when I put pressure on them, even if I've not been doing much walking. When I went to the pharmacy yesterday aft (Mon) to pick some tablets up I also asked for an appt to see my GP, Dr I. Surprisingly he had a free appt that evening, so I took it. He said that my sore heels probably aren't related to the blisters/pressure sores at all. But instead he thinks I've got something called Plantar Fasciitis. It will go on it's own but could take a while, so until then I need to get some heel cushions to put in my shoes. He also pointed out that I had very flat arches on my feet, but I don't think that's anything to worry about. And Dr I also reviewed all my medications while I was there.

When I went to the pharmacy yesterday aft I was really surprised that the pharmacist that was there asked me who I was. I was sure that all 4 pharmacists know me as I'm in there often enough! Last time I went to the pharmacy they'd ordered me too many high calorie puddings, so I just took a few with me and they said to call back in to collect the rest when I needed them. But today the pharmacist I saw told me that they didn't have any high calorie puddings in so I had to order some more. I have a feeling that next time I go in they might have loads of high calorie puddings for me!

Yesterday aft mum gave blood at the village hall like she does regularly. All went well so she came home and cooked tea. I was upstairs when she shouted up to me, so I went down and found her lying on the floor because she'd felt very faint. She was ok but I ordered her to sit down and knit and stop doing jobs!

This morn I got a DVD (Bride Wars) from Tesco rental in the post, so I'm looking forward to watching that soon. And after mum paid the missing postage for the letter, it came in the post this morn. It was from my buddy Kate and contained a really pretty card she'd made herself, a lovely letter, a bracelet she'd made in my favourite colours and a phone sock :)

Tomorrow aft I've got my 2nd Pathways to Work interview and then that evening I'm going to go to the cinema with Claire to see a new film called Precious. Despite it being nominated for lots of awards it's not being released very widely, so our local cinema isn't showing it. We're going into the city instead because a cinema there is showing it. You can read an interview with the main actress here. And it was reviewed on Film 2010 last week. The film sounds very sad and powerful, but hopefully it'll be uplifting too. And on Fri eve I've been talked into attending the first meeting of a new discussion group for teenagers in the village. I mentioned it about half way through this blog update. V has said she's going, so I'll give it a try with her if I'm feeling up to it.

My 101 in 1001 list still isn't finished. I really do hope to finish it soon, I just need to check through the goals I've already got and find a few more. I want to get the list finished soon so I can make a start on working on my goals! :D

On DVD since my last update I finished rewatching the first series of Ashes to Ashes (I watched episodes 2 to 8) and watched all the special features. The second series boxset that I bought from Tesco online arrived in the post so I'm looking forward to watching that through sometime soon, I'm going to have a little break first though. I also finished my Vicar of Dibley boxset by watching the last episode and a behind the scenes documentary that was also on the DVD. And I watched the 2 Vicar of Dibley episodes which were missing from my boxset on Youtube. And I've rewatched the entire first series of After You've Gone which I rented. I also rented and watched Johnny English on DVD.

On TV since my last update I've watched 2 episodes of Nurse Jackie, the first episode of Glee to see what all the fuss is about - I wasn't very impressed, a BBC documentary called Too Old To Be A Mum?, 2 episodes of Tracy Beaker Returns, Film 2010, a Never Mind The Buzzcocks special, a Horizon documentary called Why Do Viruses Kill?, QI XL, The Gadget Show, a channel 4 bodyshock documentary called The Girl With Eight Limbs Grows Up and a very interesting Panorama programme called I Helped My Daughter Die which debates assisted suicide with a specific look at the story of a severe ME sufferer.

And since my last update I've also enjoyed a lot of music, music videos and TV music performances :) I've been listening to lots of music on my iPod including Lily Allen, Alexandra Burke, Taylor Swift and Little Boots. Taylor Swift has just won 4 Grammy Awards including best album for Fearless :) And I found this interesting link about Little Boots. And I managed to download some more album artwork on iTunes, but some still seems to be missing.

I recorded the Hope For Haiti concert on the hard disc recorder, so watched through that this week. I loved Shakira and Taylor Swift's performances so have bought them both from iTunes.

I've watched the music channels quite a lot and have been enjoying the frequency that Owl City's Fireflies has been played, and on the radio too. I'm happy it's now been at number 1 in the Official UK Top 40 for 2 weeks now :D Another music video that's on TV a lot is Bad Romance by Lady Gaga. It's a really odd video, definitely worth watching if you haven't already just for the spectacle! I'm not usually keen on Lady Gaga, but I do like Bad Romance now. And I've now seen the new videos for Ellie Goulding's Starry Eyed and Cheryl Cole's Parachute.

On a BBC 1 radio programme on Sun night I listened specifically to a programme called Switch because I'd heard that Diana Vickers would be interviewed on it and they would do the first play of her new single Once. I loved Diana on the X Factor in 2008, but am not sure about her new single. I might need to hear it more.

Also on Switch on Sun was an interview with Marina and the Diamonds. I'd not even heard of Marina and the Diamonds a fortnight ago, but love her now :) She came second to Ellie Goulding in the BBC's Sound of 2010. She's got an amazing voice and I love her original sound. Her new single is called Hollywood and was released yesterday. I've already bought it. You can see it on Youtube here. If you like it please buy it because Marina is up against Owl City, Jedward and more in the charts this week. I really hope it charts well, fingers crossed. Her debut album, The Family Jewels, will be released later in the month. I love 2 more of her songs - Mowgli's Road and I Am Not A Robot. And she's done an cover of Gwen Stefani's What You Waiting For, which you can lisen to here. I saw an interesting programme about her on Channel 4 where she was interviewed and performed some of her songs and you can see it here. There is also an interview with her here. Her tour tickets are going on sale on Fri and I'd love to see her, but I suspect that the venues she's performing at will be standing only and if so I wont be able to go :(

I saw Mika performing his next single, Blame It On The Girls on the results show of So You Think You Can Dance on Sat. And Mika was also interviewed and performed on Radio 2 that aft, which you can listen to here. It's very funny, especially his cover song at the end. And he talked about his tour too (which I'm seeing at the end of the month) and it sounds like it'll be amazing! I can't wait :D

Sunday, 24 January 2010

Bits and pieces

As I said in my last blog update, I tried to upload some photos, but was very puzzled as to why I couldn't. The next morning I discovered that Alf was downloading some huge game for his computer from the Internet. It finally finished downloading last night!

So I've taken some better photos in the daylight to share with you and now I can upload them :) This is my new watch:
And this is the bracelet I also bought on Wednesday:

I forgot to mention on my last blog update that Chris and Sophie will be able to rent the cottage that they liked. I think they're planning to move in at the start of March.

I think I must have had some kind of virus or something last week as I felt really rotten from Mon til Thur. My last blog update covered til Wed, but then on Thur I felt even worse. I had been planning to go out to visit my Nan with mum, but I felt awful, so while mum went out, I just lay on the sofa instead. I wasn't planning to sleep, just rest, but I did nod off. I was woken by the phone 10mins later though! It was my mum's boss, but she wouldn't leave me a message, she said she'd phone back later.

On Thur eve my mum's boss did phone back. Because of budgets and trying to save money, 3 village libraries in our county are going to be closed (I think there are thirty something libraries in total). My mum's boss who is relatively new to the library was very worried by this. But my mum has worked in the library for a while and has known this to happen twice before. Last time our library wasn't one of the ones they were considering closing, but when it was the previous time the whole village went up in arms so they decided against closing it! My mum doesn't think that our library is likely to be closed, but even if they suggest it she wont be worried because she knows the power of the villagers. Her boss is still worried though.

On Friday I felt loads better and have since then so I think I must be over whatever virus or bug I had. I'm still very tired though because I've been more nocturnal than usual this last week, getting to sleep between 2am and 3am most nights. And I try to get up at a reasonable time (before 11am) each day, so think I might be a bit short of sleep. If I get into bed earlier I fall asleep earlier, but if I do then I miss the period where I feel well which is usually between about 11pm and 2am. And I don't like to do that. And I'm still getting the tummy pains, but hopefully my dietician will have some suggestions when we're in contact on Tue as I gave her my diary last week, and more headaches than usual. And I'm constantly cold.

On Friday evening Claire came round :) We did lots of chatting, I showed her some music videos I'd recorded for her, Claire did some knitting with mum and we had great fun together on New Super Mario Bros Wii :D When I was putting my CV together this week I'd discovered that I don't have some GCSE certificates from my secondary school, so Claire is going to chase them up for me. She also had a look at my CV and suggested that as well as the one paid job I've had, I should also include all the voluntary stuff I've done. So I've added that in and am now ready for my Pathways to Work appointment about my CV tomorrow. Tomorrow as we're going into town anyway, we're going to call in at Hosp H on the way there or the way back because I need bloods doing. And we'll do my Tac blood at home in the morning via a fingerprick and post that off to Hosp B.

And me, mum and Claire decided that we're going to go to the cinema on Wed to see Meryl Streep's latest film - It's Complicated. We suspect that we might confuse the cinema staff though because Claire will have her Orange Wednesday's offer (buy one get one free) and I'll have my CEA cinema card (which allows someone to accompany me for free), so we're hoping we'll just have to pay for one ticket between the 3 of us (if Claire buys her ticket and gets mine free with Orange Wednesday, then I should be able to get mum a free ticket to accompany me), fingers crossed! And the following Wed mum and Claire want to see George Cluney's new film - Up In The Air, but I've not decided yet if I want to see it or not.

Over the last few days I've been writing a letter to my penpal (Lizzy's husband's niece) who is 17 and lives in Myanmar. I finished that this morning so am hoping to post that off tomorrow.

I received the identity documents (passport, birth certificate and national insurance card) that I posted off for my CRB check back in the post yesterday. I was a bit worried about posting them off, but am relieved they arrived back ok via recorded delivery. The reason I've no faith in the Royal Mail at the moment is that they've lost a parcel one of my sixth form friends posted me about 3 weeks ago (it was a late Christmas present). I've seen no sign of it yet :( So she's going to see if she can trace it because she's got a receipt to prove that she did post it. Fingers crossed.

I tend to stick with eating the foods that I like, especially for lunch - I always eat Marmite sandwiches. But when we ate out at the cafe on Wed I discovered that I quite like toasted teacakes :) So I had them for lunch yesterday instead of my usual Marmite sandwiches.

Yesterday I persuaded dad to play on my Wii with me and we had great fun on Wii Sports Resort. I beat him at archery and thrashed him at swordplay, but he beat me at golf (how boring!) and cycling, which is the most exhausting sport on there! And yesterday I also had a go on New Super Mario Bros Wii by myself but I'm stuck, it's too hard for me. I might have to see if I can persuade Alf to help me ;)

Sometimes the Radio Times have really good offers. I mentioned the offer for the exclusive Doctor Who book in my last update. In one of the recent issues they offered a free Lonely Planet magazine to readers or 3 Lonely Planet magazines for just £1. So I phoned up and requested the 3 magazines for just £1. I've never read the magazine before, but would love to travel more, so hopefully I'll find it interesting.

The other day I was wondering about how the audiences for TV programmes (such as QI) are assembled, so I had a look on the Internet and found Applause Store. I've signed up and been placed on the reserve list for tickets for QI, Never Mind the Buzzcocks and The X Factor. So hopefully they'll notify me when the filming dates are released and if I'm quick I might be able to get tickets to be in the audience, fingers crossed.

I've just discovered a great website called DVD Spot which searches online retailers to find the best DVD prices for you :) What a good idea, it will prevent me searching lots of different websites. They don't check Tesco which is one of the websites I usually check, but they check all the other reasonably priced ones I know.

I was listening to my iPod this afternoon and didn't know what else to do with myself. I'm not very good at just listening to music. So I played Solitaire on my iPod as I often do and then rediscovered another game on it called Vortex which I'd not played recently. It's quite addictive :P Does anyone reading this remember the Superplexus, a puzzle toy that was released a few years ago now? I still have mine and so tried that again this morning. I thought I'd find it easier now I'm older, but I still can't complete it. Grrrr :P

I've not managed to finish my 101 in 1001 list yet, I'm still short on some goals. I've got about 90 at the moment, so hopefully it wont be too long til I complete my list. I'll post it up when it's finished.

I've said before that I currently really like a song called Fireflies by Owl City. Hopefully it'll be number one in the chart tonight, fingers crossed. This is Boyzone's new single, Gave It Away. I'm not really a Boyzone fan, but you might be surprised to know that this song was written by Mika. To me it sounds nothing like Mika's music, but that shows what a versatile songwriter he is.

Today I've been listening to lots of music - I'm currently listening to Alexandra Burke's Overcome album, but I've already listened to Pink's Funhouse album, Pixie Lott's Turn It Up album, and Mika's The Boy Who Knew Too Much album :D Today it is 5 weeks til I'm seeing Mika in concert again, yay! This afternoon me and H have been texting each other about it because we're both so excited. If we're this excited with 5 weeks to go I don't know what we'll be like nearer the time! H has seen him in concert once before and is also a huge fan, so it should be great seeing him together (and my mum will be coming too). I invited H to come to the first concert I saw him at with me, but she was away, so 2 years later we're doing it :) And in less than 5 weeks me and mum are seeing The Noisettes in concert. You can see their new single, Saturday Night, here.

I'm really pleased that Sandra Bullock has been winning a few awards recently. I think she's a great actress, but never really seems to get the recognition I think she deserves. But recently she's won a Critics Choice award and then yesterday she won a Golden Globe. Both of these awards were for her as an actress in a film called The Blind Side. It's only been released in the USA so far, but should come to cinemas here in March.

On TV since my last update I've watched the 2 latest episodes of QI, Thur's episode of The One Show (because it had a feature on dyscalculia in it which is what my mum has), The World's Biggest Family and Me on C4, Brits Hits 30 and Horizon: Pill Poppers. And I recorded the Hope For Haiti concert, but haven't watched it yet.

On Thur I found out that Ashes to Ashes series 3 will be televised this spring and some sources suggested it might start next month. I loved Life on Mars and I also really like Ashes to Ashes. But I can't really remember what had happened in Ashes to Ashes series 1 and 2, so I'm going to attempt to rewatch them before series 3 is televised. I'd already got series 1 on DVD and I bought series 2 from Tesco online on Thur, so hopefully that will come in the post soon. I watched the first episode of the first series yesterday and followed it better than I expected. It seemed like much longer than an hour in length though. I'm going to try to watch the second episode at some point today.

Since my last update I have also finished watching all the episodes of Gavin and Stacey. I think we've watched them all in about 3 weeks! :D We bought series 1, borrowed series 2 and 3 from the library and rented the Christmas special from Tesco DVD rental. So since my last update we watched the Christmas special and watched the extra features from that DVD and from the series 3 DVD. And I've joined all the groups on Facebook campaigning for another series! :P

I also watched Absolutely Fabulous The Last Shout (and the extra features) which I rented from Tesco DVD rental. So over the last few months I've also watched every single episode of Absolutely Fabulous which has been released on DVD (series 1 to 6, Gay and The Last Shout) without buying a single one - all rented from Tesco or borrowed from the library! I'm going to buy the complete collection (Absolutely Fabulous Absolutely Everything) though when that comes out in Oct. And hopefully that'll include the last ever episode, The White Box, too as that hasn't been released on DVD in the UK yet - but the USA have it despite it being an English programme!

And I've watched 2 more full Vicar of Dibley episodes, 2 short Comic Relief episodes and some extra features from my boxset. I've only got one episode left and then I'll have watched them all. I think I might watch that tonight when I'm nocturnal :P

Friday, 22 January 2010

18 months

Today marks 18 months since both my stoma reversal and me developing ME. It seems like I've been without a stoma for much more than 18 months, but it seems like I've not had ME that long. Weird. Mum was surprised it is just a year and a half since I developed ME though, she thought it was 2 and a half years, but she does have dyscalculia - number dyslexia. Getting my stoma reversed was such a great moment for me and something I'd been looking forward to since I discovered that I would need one temporarily at the first meeting at Hosp B before my transplant. But obviously I didn't realise at the time that that operation would somehow lead to me developing ME.