I'm feeling really fed up with everything today. I'm exhausted yet again and I find it very difficult to be positive and optimistic when I feel like this. I can't settle to do anything because I'm so tired and it doesn't help that I know I should be revising. However when I feel like this I just can't take any information in, no matter how hard I try. I'm also worried about my exams as I've not been able to get into school for a few days this week, so don't know how I'll feel next week and for the rest of the exam period. And when I'm exhausted I can't remember things, so am dreading the exams. I really want this referral to the M.E. unit now as I feel I need to learn some coping strategies and I'd really like some support, but I don't know if the referral will happen at all now and even if it does I can't see it happening in the near future.
Sorry for moaning, I usually try to keep my posts positive, but just feel like I need to write everything down and then maybe I'll feel better. Hopefully my next post will be more positive. Thanks for reading.
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As my mum says ' your aloud to feel what you want to feel' i know it doesnt help, but she always says it to me when i feel fed up.
ReplyDeleteI really hope that you get that refferal, cant you ring your transplant centre and see if they can ring the CFS unit and see if they can help anyway by saying that you really need this? It may help, just a suggestion.
Thinking of you lots and hope things start improving,
Emma x
Thanks Emma. The referral so far has been done solely by my GP because my consultants at hospital B and hospital A couldn't help me as the tiredness isn't directly related to my transplant, so it's outside of their area of expertise. But I might try contacting one or both of my consultants to see if they could add their weight to the referral, as coming from a consultant it might be taken more seriously than coming from a GP. I'm not sure, but it might be worth a try.
ReplyDeleteMoll x x
Sorry to hear you're feeling so rough, Molly; don't worry about blogging about it though. I find it sometimes helps to be able to express your feelings, rather than just keeping them bottled up. I hope things start to look more positive soon,
ReplyDeletelots of hugs,
Becky xxx
Not got any words of wisdom... sorry Mol, just know that I am thinking of you!
ReplyDeleteMuch Love x
Thanks Becky and Holly. Hugs.
ReplyDeleteI try to keep my blogs positive as I know that now I'm not life-threateningly ill like I have been a few times in the past, so I feel I shouldn't complain. But it's difficult sometimes and I often feel very down about it all. I just want to get on with my life now I've had my transplant, but I can't.
It's nice to know that people read my blog and people care.
Moll x x
Hope you feel better soon Molly, don't be too hard on yourself, you've got a lot going on right now, not surprised you're lacking in energy and everyone feels down and fed up sometimes, you cant always be positive.
ReplyDeleteThinking of you, hope you have more energy soon!
Abby xxx