Saturday, 1 May 2010

Getting up to date with April - part 2 (organ donation)

I'm not feeling too well tonight (just exhaustion, a headache and dizziness again), so this probably won't be a very long update. I'm going to get an appt with my GP after the bank holiday if I'm still struggling with dizziness then. I thought that this update could be about organ donation in the news and news on my friends in the transplant community.

Rachy is continuing to make very good progress after her transplant and has now got her trachy out so she can talk again and has left ICU :) You can keep up to date on Rachy's progress on her blog here. Last month Rachy was in her local newspaper which you can see here and had an article on her hospital's website which you can see here.

Following the organ donation story in the news at the start of the month (about people's wishes about which organs they wanted to donate being wrongly recorded), which I blogged about here, Tor went on GMTV to talk about it. You can see the video on her blog here.

Organ donation was in the news again later in the month when the suggestion of donors being paid for organ donation was raised. You can see The Independent's article about it here. I agree that things need to be done to try to increase the numbers on the organ donor register to stop 3 people here in the UK dying every day while waiting for transplants, but don't think this is the way to do it.

I am not a fan of the Daily Mail, but they published a fantastic article a couple of weeks ago about a day in the life of a transplant co-ordinator. You can see it here and it's well worth a read.

My friend Holly was admitted to hospital earlier in the month after feeling unwell and was soon discovered to have pneumonia. Luckily she's back at home and on the mend now though.

K spent a spell in Hosp B recently also with pneumonia. It hit her quite hard and she very unwell for a few days. She's a fighter though and was soon feeling much better. While she was in Hosp B the doctors had a meeting about her to decide what organs she would need to receive in her second transplant. Shortly after K returned home she was relisted for another small bowel and liver transplant. I hope she gets her call soon and that her second transplant goes as smoothly as possible.

Through blogging I recently met a lovely lady called Michelle. She lives in Canada and has had a transplant like mine. If you don't read her blog please pop over and have a look by clicking on her name where it is highlighted just above. We've been emailing each other since and it's great to be able to chat to someone who can relate what I've been through :)

4 comments:

  1. Hi Molly,

    So sorry to hear you are still suffering from the dizziness and being unwell (hugs). I really hope your GP can figure things out so you no longer have to deal with it.

    I have been following Rachy's blog and was so thrilled when I read she is trachy free and out of ICU. I remember when I had my tx that just getting out of ICU and onto the ward was such a big accomplishment and a great relief. Go Rachy!!!

    The link for the Independent's article didn't work for me??? I read all the others about Rachy. Thanks for sharing! I especially liked reading about the Transplant coordinator. That was great and very informative!

    I am sorry to hear about your friends Holly and K getting pneumonia. I am glad they are both home and getting better now. I wish your friend K the best of luck for her second transplant. I hope she gets the call real soon.

    Thank you so much for the kind words and mentioning me in your blog. I love to get more readers and followers!! Thanks again!!

    Take care,
    MJ x x

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  2. Thanks Michelle.

    The Independent link worked when I put it up but doesn't seem to be working now. I'll see if I can find another similar link in the morn if it's still not working then.

    Take care,
    Moll x x

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  3. Hey sweetness! I love ur blog cos ur so good at putting up links and references to all thats interesting and wonderful. Good and bad news. I am gonna spend this wet and rainy morning having a good look at your links babe! Thanks for taking the time to do that. Sometimes I'm so tired I just forget to so the links!! Lol! Sorry to hear about the dizziness being problematic. Could it be a meds thing or ME related? Just finished doing my 8am meds and now time for a wiggle and a shake. I'm sure I do rattle!!! Ideally I'd like to catch some more sleep but unlikely with a sea of things to do. Now I'm in the world of work (a little) it means I have less time for housework and organising bits and pieces. So every pocket of time is precious now! Hoping to do some crafting today as I have a fayre at the end of the month and not much to showcase atm!! Would love to go bargain hunting at a boot fair with u one day!!! Have a good weekend hun and hope u feel better soon!! xxxx

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  4. Aww thanks Lou. I think the links should all be working, the Independent one is working again. Hehe, that's ok. The links are only there for if you want to have a look, there's no pressure to do so.

    I don't know what the dizziness is related to. I guess it could be an ME thing but I've never had problems with it before this week, so if it is ME related I don't know why now. I don't think it's related to any meds because none of them have changed recently. Think it could be something to do with my ears because they were sore a few days before the dizziness began, but I'm not sure. I'll get it checked out with my GP after the bank holiday.

    I hope you have a nice day Lou and enjoy doing some crafting. The fayre sounds great :)

    Take care,
    Moll x x

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