On Fri I felt a bit more down than usual in the morning but I was ok. I discovered that my slippers were about to fall apart which is frustrating because I've not had them very long. I think that my feet are too wide for them so they've burst the stitches. I definitely need to do a clothes shop soon because all my clothes seem to be falling apart! That morn I had a chat to my parents about my rent and it's been increased slightly but the monthly amount is still manageable out of my benefits money.
That aft me and mum were going to go and see my nan, but I had bad tummy pains again so decided to stay at home while my mum went out. I don't know why my tummy pains have got a lot worse over the last few days. I did miss one dose of Amitriptyline but wouldn't have thought that would cause this. I'm only on a very small dose of Amitriptyline so am going to ask my Hosp A consultant when I see him in a couple of weeks if increasing my dose might help. My next clinic is now just 2 and a half weeks away and I'm still not happy about completing my transition then, so will let the team there know that when I see them. I'm still waiting to hear back from S about my questions relating to Tac bloods.
I was sorry to miss seeing my nan on Fri so hopefully I'll see her at some point this week. My tummy soon felt a bit better so while mum was out I watched a DVD called Jumper which I enjoyed more than I expected.
Then I heard that Ellie Goulding had announced dates for a UK tour in Oct/Nov and would be coming to a seated venue near me. I saw her supporting Little Boots last Oct but didn't know her or her music then so would love to see her again now I know more of her songs. The tickets go on pre-sale on Wed morn so I'm going to try to get some then. I'm waiting to hear from Claire about whether she'll be free to come with me and mum.
On Fri I really struggled with eating my tea. Generally I'm finding eating a bit easier at the mo but sometimes I do really struggle with it. That eve I really enjoyed watching the penultimate episode of Ashes to Ashes with my parents. I can't wait for the final episode on Fri but also really don't want it to end. Before I went to bed that night I listened to Diana Vickers' album, Songs from the Tainted Cherry Tree, and Little Boots' album, Hands. I've been listening to Diana Vickers' album a lot but that was the first time I'd listened to Little Boots' album in a while so I enjoyed that.
I didn't feel too good on Sat but I didn't feel too ill. I really struggled to get up in the morn, I was more tired than usual, my feet ached all day (not the pain I usually get but just lots of aching like I'd done too much walking the previous day, but I hadn't) and I felt quite lightheaded at one point.
Something I struggle with at the moment is wearing clean clothes. They often feel very uncomfortable for an hour or two when I first put them on, especially my jeans. I thought this was just me being weird but I've recently discovered that having oversensitive skin can actually be a symptom of ME. I don't think there's anything I can do about it though. I also find that finding new clothes that are comfortable is very difficult so I'm not looking forward to having to replace all my clothes that are starting to fall apart.
That morn I watched Embarrassing Bodies: Kids on 4OD. I was very excited to receive a text as I thought that meant my mobile was working again, but it wasn't. I had a little look at my DLA forms and I relieved that they don't look too hard to fill out as it's mostly just ticking boxes. Not sure how I fit into their categories though, so I suspect I might end up losing my DLA. I've decided that I'm going to try to get them completed and sent off before my parents and brother head off to Glastonbury in just over a month. I just need to find a time when dad can have a look at them with me.
While I wasn't feeling so good I listened to The Family Jewels by Marina and the Diamonds on my iPod. Then Chris popped round. It was nice to see him and he stayed for tea. He's going to try a different job so he was telling us about that. He currently helps to manage a restaurant that is attached to a hotel and he's always worked in bar work or catering (not actually cooking, but managing). However he's decided to go across to the hotel and work there with administration, finances and working at the reception etc. The pay is the same and it's the same hours though at more sociable times. He's interested to learn more about how the hotel works and it'll look good on his CV too. He's starting a few hotel shifts this week and then increasing them over the next couple of weeks. Hopefully it'll all go well for him. His car's broken again and isn't reparable this time. That's what happens if you buy cars from eBay! Chris also had a fiddle with my phone but had no idea what the problem was. Mum remembered that there is a Nokia repair place nearer than a T-Mobile shop so we thought about taking my phone in to be looked at there.
On Sat eve I enjoyed watching Doctor Who with my family. I thought Sat's episode was really good and very original. After that I watched the music channels for a little while and then a good film on BBC3 called Flightplan. That eve I had tummy ache, which isn't a time I usually have tummy ache. This was just an ache though rather than a pain so I managed to get to sleep ok with it.
On Sun I got up about 2/3 hours earlier than I usually would and with my parents I headed out to the annual carboot sale at my old secondary school. I was quite worried about bumping into people I knew there, but I only saw 2 and managed to avoid them seeing me :P At the carboot sale I picked up a couple of things for Claire (an old Take That annual and a Tardis tin), 3 books (the Script book of Juno because I love the film, the novel Stardust which I hope to read at some point because I recently enjoyed watching the film and a children's book by Malorie Blackman which I used to enjoy reading) and 4 DVDs (Beaches, The Magic Bubble, Down with Love and Aardman Classics). When I met up with my parents at the end mum showed me a Nokia 3310 that she'd picked up to me. I've been using it since then and it's fantastic to be able to phone and text again :D The only thing I miss with using an older phone is the camera, but apart from that it does everything I need and should last me til Chris passes his iPhone onto me at the end of Sept.
I felt a bit odd that afternoon which I think was probably due to getting up much earlier than usual. And I also had more dizzy spells than I had been having for the past week or two. Hopefully my dizziness will clear up completely soon, fingers crossed. When I got home from the carboot sale I was really pleased to hear that Tori had received her transplant call. Since then she's had her transplant and it sounds like she's been making really good progress. I don't know Tori personally but have been following her blog for a while now.
I enjoyed doing a couple of little jigsaws and then sorted through the HDR and deleted some recordings. While I was doing that I rewatched the first part of the first episode of the current series of Doctor Who with mum, watched last week's Friday Night with Jonathan Ross (to see Alexandra Burke being interviewed and Ellie Goulding performing) and watched the music channels for a short while. Then I put out all my tablets for the week and made a note of which ones I was running short of.
On Sun eve I rewatched Mamma Mia with my mum. We quite enjoyed watching it together but I don't think it's as brilliant as everyone seems to say it is - it's so cheesy and some of the songs have no relevance at all to the plot (especially The Winner Takes it All which had me and mum in fits of the giggles much to dad's bemusement!).
Later that eve I felt really down about everything and kept crying. I know it's silly as I've not really got anything to be upset about and I know that my health and my life is much better than lots of people I know, so I shouldn't get upset, but you know how it is sometimes.
To try to cheer myself up after that I decided to try out a new Wii game called Okami which had some really good reviews. It looked great but unfortunately the game requires drawing lines with the Wiimote and my hands aren't steady enough to do that so I can't play the game, which is very disappointing. Before I went to sleep I started listening to the latest ONM podcast.
This morn I helped mum out with some errands around the village. We went to the surgery (to drop off a prescription for me and pick up mum's tabs), the library (for mum to do some cleaning and I picked up a Scoubidou book and a DVD), the post box (to post back one of my rental DVDs), a shop (to buy some croissants, milk etc) and another shop (to buy some bread).
While me and mum had lunch we watched the music channels and part of a stand up comedy programme by Dylan Moran. I was also given a link on Facebook to a letter written by Nick Clegg about ME which you can view here. I was very impressed with it.
This aft I had a bit of a meltdown. I don't really want to go into detail about it but I just got really really upset for no real reason and ended up going back to bed for a few hours. I don't know what's up with me at the mo.
This eve I listened to Ellie Goulding being interviewed on a radio programme which you can listen to here. After tea I ate my final high calorie pudding, yay! :D I'm now going to see how my weight goes without having one high calorie pudding each eve. I'll weigh myself tomorrow and then hopefully when I weigh myself again 2 weeks later my weight won't have dropped. I've just watched the 2nd part of Wormwood Scrubs and the 3rd episode of Bizarre ER. I'm currently watching The Graham Norton Show because Ruth Jones is being interviewed and Katie Melua will be performing The Flood later. I'm never been a Katie Melua fan before, but I do like The Flood. I've just been laughing aloud at them talking about accents, very funny.
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I went about 5 years with only getting dressed a handful of times (for hosp appoints which couldnt be avoided), the rest of the time i was in (and still am 99% of the time) over sized nighties due to my skin being too sensitive. i find softer cotton things easier, and in a couple of sizes too big!
ReplyDeleteSorry to hear that you're so affected by skin sensitivity problems Viks. Hugs.
ReplyDeleteMoll x x
I'm sorry to hear you've been feeling a bit down lately, I hope you soon cheer up.
ReplyDeleteHugs,
Emma x
hun Im so sorry to hear you've had a down spell lately...it feels awful I know and its hard to shift but you really do bounce back. Sometimes those pesty grey clouds just seem to hover and I think we end up accepting those times. With all those meds we're on its likely our bodies just dont want it any more and gets all fidgety!! Thats my warped theory anyway!! Lol! Nice that u and mum have been lunching and the new Wii game sounds great. Thanks for ur lovely message on my blog. Yeh I quite like that artist Ellie Goulding...some of her tracks are really good :-)
ReplyDeleteHope u have a better week with rainbows xxxx
Thanks Emma and Lou. I've been feeling a bit better today so I hope it continues.
ReplyDeleteTake care,
Moll x x