After another weekend of feeling rubbish I decided to try to do something about my tiredness. I've still not had a response from the email I sent to Dr W from Hospital A, so this evening I had an appointment with my GP, Dr I. He's known me since I was a baby, and is really good, so I hoped he'd have some suggestions. I filled Dr I in on the progression of my fatigue from July til now and told him about how it's affecting me. He asked me some questions and also asked what I know about Chronic Fatigue Syndrome. Then Dr I said some of what I'd described sounded like CFS, but some things didn't quite fit, but he knows how complicated I am! And he also reassured me that it didn't sound like I had depression (which was something I'd been wondering about), but it just sounded like I was fed up and frustrated with feeling so tired.
I was then told that there is a CFS unit just down the road, which Dr I said he could easily refer me to. He'd just need to write them a letter. Although it may not be CFS that I have, they'd still be able to offer me some support. So I said that sounded great and so he's going to refer me. However, they receive a lot of referrals, so it will be a couple of months before I get a referral, which will be after the exams I'm currently quite worried about :( But at least I've made some progress and will get a referral eventually.
And Dr I said that he thought doing some exercise might help me to feel a bit less tired (I currently don't do any), so he suggested I go swimming when I can, as that's the exercise I most enjoy. So I'm going to try that again (possibly next weekend), although last time I went swimming I think it gave me bad stomach ache, so I'm a bit wary.
Subscribe to:
Post Comments (Atom)
I'm glad you've made a little progress. Hope that you get a reply to your e-mail soon.
ReplyDeleteEmma x
Thanks Emma. The email to Dr W doesn't matter now as my GP is handling it. Xxx
ReplyDeleteHey!
ReplyDeleteI just saw your reply my message on your previous post. Id be very happy to answer your questions! Is there any way we could email so the messages weren't public? Um this could be tricky cos I also dont want to type my email address here.... hmm! Any ideas?!
Thanks Jessica :)
ReplyDeleteI've just enabled comment moderation, so from now on comments won't go through until I've seen them. So you can now leave a comment with your email address - I'll read it privately and then delete it so it doesn't become public. Xxx
Hi Molly, so sorry to hear you are struggling with exhaustion. I know first hand how awful it can be. I'm not post-transplant but I do have Cystic Fibrosis (a lung disease that leads to a need for transplant eventually).
ReplyDeleteMy doctors spent a year trying to work out what was causing my exhaustion and did numerous tests but never found a specific cause. They said they think its just because my body is dealing with so much. It's so frustrating isn't it? Especially when no one can pinpoint a cause or provide a treatment for it.
Thankfully the exhaustion has lifted a bit over the last few months, though again there is no apparent explanation. Perhaps your body is reacting to having been through so much over the last few years so it just gets tired very easily?
Whatever the cause, I really hope they can find an explanation or at least a way of helping you through it.
Take care
Emma x
(I'm Emmie on Intoto!)