On Tuesday I'd planned to have a very productive day, as I'd got the day off school, but of course things never go to plan. I had a really tired day and ended up doing nothing for most of the day. But never mind, some days are just like that.
Tuesday evening I heard back from my dietician and she said my weight was fine and we can review it again in 2 weeks. She's happy to send me some samples of some high calorie drinks to try as she thinks they might boost my weight a bit. On the email I sent to my dietician on Tuesday morning I also asked her about the British Transplant Games. They run every summer and hospital B always enters a children's team. I wanted to participate last year, but the games were just after my reversal, so I wasnt well enough to go. I wanted to take part this year, but worried that at 18 I might now be too old for the children's team. My dietician is the hospital B team manager, so I asked her if I could participate. The maximum age has been raised to 20 in the children's teams, so I can participate! :D I'm not at all sporty, but I'd like to have a go, and apparently it's quite a social event, so it should be good. Some of my friends from the transplant community are also planning to take part. It's at the end of July, so I need to clear it with my parents (as it's a 4 day event and is in Coventry) and then I'll have to fill out all the entry forms. I'll keep you updated.
Wednesday I just had double biology, so went into school at break and mum collected me at lunch time. However in the morning before we set off I had a nosebleed. It gave me a shock because I had some awful experiences with nosebleeds when I had liver failure, I used to get frequent nosebleeds that just wouldn't stop, it was quite scary. Anyway since my transplant I've only had a couple of nosebleeds and they'reusually very small and stop quickly. But on Wednesday it took a while to stop, so I was a bit nervous, but it did stop and I managed to get to school. Then yesterday afternoon I just relaxed for most of the afternoon because I was so tired, again.
Yesterday I heard from hospital B, saying they'd received my latest blood results from hospital H and they were all fine. They also chased up my Tac bloods, which we do at home, but I explained that it was a bit late as I'd run out of the kits, so had had to wait for some more to arrive in the post. But I'd taken the blood on Tuesday evening, so it was on it's way.
On Wednesday evening I watched a really interesting BBC documentary called Deborah 13: Servant of God. I'm an aethiest, so I wasn't expecting to agree with the views in the programme, but was really shocked and a quite saddened by the extreme views and sheltered lifestyle of Deborah, who is just 13 years old. I was left thinking about the programme for a long time after I finished watching it and would be interesting to know what you thought if you saw it. If you're interested to watch it it's available on BBC iPlayer here.
Today I was planning to go to school til lunch, but woke up this morning feeling ill. My glands were swollen, I had a sore throat and a bit of a temperature (nothing to worry about, but a little higher than normal) and I was exhausted so I stayed at home. I went back to bed this morning for a few hours and woke up feeling a bit better. I'm trying to be productive today, and so far have been sorting out my ringbinders full of school work and putting dividers in. This should make it easier when I come to start revision. I've also started thinking about the talk I'm giving in 2 weeks to health professionals about my experience of small bowel transplant. I've been through my files on the computer and found the various articles I've written in the past and the plans for previous talks I've given, so they'll help me come up with some ideas. I'm looking forward to this talk, as I really enjoy things like this, but I'm a bit nervous because my talk is expected to be up to 20 mins long (including questions)!
Tomorrow I've not got school as it's a training day, so am planning to go into town (as I want to buy a magazine and some writing pads for school) and then me and mum are going to see 'The Young Victoria' at the cinema. In the evening my friend Claire is coming round to see the remainder of my Japan photos and we're going to watch Comic Relief together. Quite a busy day, so I'm hoping I'll feel ok and not too tired.
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Sorry to hear that you have been ill today. Fingers crossed your not to tired for tomarow.
ReplyDeleteLooking forward to seeing you at the transplant games if you do make it :)
Emma x
Thanks for the comment Emma. It'd be great to see you at the Transplant Games, fingers crossed we can both make it. Xxx
ReplyDeleteSorry you've been ill, hoping you feel better, and less tired, soon!
ReplyDeleteI've just looked up Taylor Swift, after you mentionned her a few blog posts a go, and have fallen in love with 'Love Story'! I may have to hunt down a copy of her album myself, thanks for telling me about her! Becks xx
Hope you feel better soon.
ReplyDeleteI was going to watch the servant of God prog-thanks for reminding me. I'll watch it on i-player and let you know what i think.
Enjoy the cinema
x
Thanks Becky.
ReplyDeleteI love 'Love Story' too :D
Taylor Swift's first album 'Taylor Swift' hasn't been released in the UK, but I've ordered a copy from America via Amazon.co.uk marketplace. I'll let you know what that's like when I receive it.
Her second album 'Fearless' has just been released in the UK. I like it, although none of the songs seem as instantly catchy as 'Love Story'. But some are quite memorable after a couple of listens. And the UK edition of 'Fearless' also includes some of Taylor Swift's US hit singles from her first album :)
Moll x x
Thanks Jessica.
ReplyDeleteI'm be interested to know what you think of the programme, so please let me know. It really made me think.
I'll let you know what I think of 'The Young Victoria' after I've been to see it tomorrow.
Moll x x
Heya,
ReplyDeleteI just watched the prog. It was really really interesting.
All the religious views aside, I was very impressed with the strong family unit she has, and also the fact that they didn't live their life based on pop stars and reality tv- i think thats really cool. I feel quite sad that she hasn't got any friends. Friends are essential to being happy, and learning about yourself, relationships and life.... I think its sad. I'd be her friend!
I'm not sure if Im shocked or not by the sheltered life they live. I can kind of relate to some of that because I didnt have experience of things like popular TV, and music etc until I went the secondary school- but I think you have to have experience of everything in order to decide if you like it or not.
I'm a christian so the 'religous' side I'm familiar with. I did find some of it a bit OTT though, especially for a 13 year old- she should be out having fun and playing and doing things with friends. I thought she seemed very grown-up for her age.
I thought their conversations on the big bang were interesting (I have a friend who doesnt believe dinosaurs existed...which i find quite hard to understand- but everyone is entitled to an opinion!). It seemed to me that they perhaps hadn't experienced enough of other opinions to be able to make a true judgement on creation.
Its a fascinating prog. I's love to know your thoughts on it x
I've just watched that documentary, and found it extremely interesting. I would class myself as agnostic - I used to be Christian, but don't really know what I believe at the minute, although I think I'm leaning towards Atheist. I have to say, I often feel a sense of 'brainwashing' when seeing extremely religious youngsters like Deborah, as I have a couple of friends who are like this, and I often wonder how someone so young can really have seen enough or know enough to be able to commit their entire lives to God. Is it just their parents will?
ReplyDeleteThe most disturbing part for me was the way she focused on eternity - and eternal life in hell. Personally, I do not see the point in spending 70 years or however long you live working towards the after life that may or may not exist, often making yourself unhappy and depriving yourself of things in the process. I have absolutiely no problem with religion, an respect whatever anyone else chooses to believe: my problem tends to come when people try to force their points of view on you. It's fine in a discussion, but when it is one sided and quite foreceful, insulting and unaccepting of your own views, it tends to annoy me.
It seems a real shame to me that she seems to worship God because of a fear of what will happen if she doesn't (hell). I also think that she could worship God however she wished whilst still going to school, as she seems extremely segregated and sheltered in her life. I also, like Jessica, got the sense of her seeming so much older than she is - and I really think it's a shame that she's skipped her childhood.
Obviously, there are some aspects of her life which are pretty close to many peoples 'ideals' - no alcohol, no sleeping around, and a close family unit. However, I think there are ways of having these things without needing the extremes that they've gone to - especially the social segregation, which Deborah didn't seem to have any inclination to break.
And sorry I've gone on so much!! It was just a fascinating programme, and I don't get a chance to discuss religion much, as like I said, I don't like putting my views on other people. That's the end of this little novel I've written. lol xxx